For more information or to schedule an appointment, contact our clinical coordinator at 773-702-4347.

Cure HHT Center of Excellence

Cure HHT logo

Hereditary hemorrhagic telangiectasia (HHT), also known as Osler-Weber-Rendu syndrome, is a rare genetic condition that causes bleeding due to blood vessels that did not develop correctly. HHT causes arteriovenous malformations (AVMs) — tangled connections between arteries and veins. AVMs can affect different organs, including the gastrointestinal system, skin, lungs, liver and brain. Complications from arteriovenous malformations range in severity from discoloration of the skin to bleeding and disruption of normal organ function.

Coordinated Care, Integrated Approach

Due to the complex nature of hereditary hemorrhagic telangiectasia, most patients require coordinated care by experts in many specialties. At the University of Chicago Medicine, we take an integrated, multidisciplinary approach to the diagnosis, evaluation and treatment of individuals with HHT. Whether a patient needs genetic screening or a complex procedure, our team of specialists have the resources and expertise to provide advanced and comprehensive care.

Expedited patient transfer, urgent transfers and consultations

If you are a healthcare provider and wish to transfer a patient with a neurologic emergency or to speak with our team directly, call our dedicated NeuroICU transfer line at 1-773-834-6742. It will be answered by an attending neuro-intensivist, addressing ischemic stroke, brain bleeding, status epilepticus, neurotrauma, hydrocephalus, tumors and other neurologic emergencies.

If requested, we will facilitate seamless transfer and make arrangements for bed assignment

To schedule a consultation for a less urgent neurovascular condition, call us at:

Transfer Center

Meet Our HHT Team

At UChicago Medicine, our integrated, multidisciplinary team of adult and pediatric experts evaluates patients and coordinates care for hereditary hemorrhagic telangiectasia (HHT).

For more information or to schedule an appointment, contact our clinical coordinator, Zeena Franklin, MSN, RN at 773-702-4347.

Our HHT team is led by: 

Kenneth Cohen, MD and Michael Earing, MD

 

Our HHT Clinical Coordinator:

Zeena Darji, MSN, RN, HHT Clinical Coordinator

Zeena Franklin, MSN, RN

Request an Appointment

We are currently experiencing a high volume of inquiries, leading to delayed response times. For faster assistance, please call 1-888-824-0200 to schedule your appointment.

If you have symptoms of an urgent nature, please call your doctor or go to the emergency room immediately.

Learn more about our specialists and schedule an appointment instantly through our online scheduling portal.

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By submitting this form you acknowledge the risk of sending this information by email and agree not to hold the University of Chicago or University of Chicago Medical Center liable for any damages you may incur as a result of the transfer or use of this information. The use or transmittal of this form does not create a physician-contact relationship. More information regarding the confidentiality of this request can be found in our Privacy Policy.